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Refinado por: assunto: Quality of Life remover
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1
Patient-reported outcomes and quality of life in recessive dystrophic epidermolysis bullosa: A global cross-sectional survey
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Patient-reported outcomes and quality of life in recessive dystrophic epidermolysis bullosa: A global cross-sectional survey

Eng, Victor A. ; Solis, Daniel C. ; Gorell, Emily S. ; Choi, Sara ; Nazaroff, Jaron ; Li, Shufeng ; de Souza, Mark P. ; Murrell, Dedee F. ; Marinkovich, M. Peter ; Tang, Jean Y.

Journal of the American Academy of Dermatology, 2021-11, Vol.85 (5), p.1161-1167 [Periódico revisado por pares]

United States: Elsevier Inc

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2
The challenges of living with and managing epidermolysis bullosa: insights from patients and caregivers
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Artigo
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The challenges of living with and managing epidermolysis bullosa: insights from patients and caregivers

Bruckner, Anna L ; Losow, Michael ; Wisk, Jayson ; Patel, Nita ; Reha, Allen ; Lagast, Hjalmar ; Gault, Jamie ; Gershkowitz, Jayne ; Kopelan, Brett ; Hund, Michael ; Murrell, Dedee F

Orphanet journal of rare diseases, 2020-01, Vol.15 (1), p.1-1, Article 1 [Periódico revisado por pares]

England: BioMed Central Ltd

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3
Outcome measures for autoimmune blistering diseases
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Artigo
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Outcome measures for autoimmune blistering diseases

Zhao, Cathy Y. ; Murrell, Dédée F.

Journal of dermatology, 2015-01, Vol.42 (1), p.31-36 [Periódico revisado por pares]

England: Blackwell Publishing Ltd

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4
A phase II randomized vehicle-controlled trial of intradermal allogeneic fibroblasts for recessive dystrophic epidermolysis bullosa
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Artigo
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A phase II randomized vehicle-controlled trial of intradermal allogeneic fibroblasts for recessive dystrophic epidermolysis bullosa

Venugopal, Supriya S., MBBS, MMed (Clin Epi) ; Yan, Wenfei, MD, PhD ; Frew, John W., MBBS, MMed (Clin Epi) ; Cohn, Heather I., MD, PhD ; Rhodes, Lesley M., RN ; Tran, Kim, MBBS, FRCPA ; Melbourne, Wei, MD, MSc ; Nelson, Janis A., RPh, MPharm ; Sturm, Marian, PhD ; Fogarty, Janice, RN ; Marinkovich, M. Peter, MD ; Igawa, Satomi, MD ; Ishida-Yamamoto, Akemi, MD, PhD ; Murrell, Dedee F., MA, BMBCh, MD, FACD

Journal of the American Academy of Dermatology, 2013-12, Vol.69 (6), p.898-908.e7 [Periódico revisado por pares]

United States: Mosby, Inc

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5
A prospective short-term study to evaluate methodologies for the assessment of disease extent, impact, and wound evolution in patients with dystrophic epidermolysis bullosa
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Artigo
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A prospective short-term study to evaluate methodologies for the assessment of disease extent, impact, and wound evolution in patients with dystrophic epidermolysis bullosa

Paller, Amy S ; Pope, Elena ; Rudin, Dan ; Malyala, Anna ; Ramsdell, Deborah ; Johnson, Ramsey ; Landy, Hal ; Murrell, Dedee F

Orphanet journal of rare diseases, 2022-08, Vol.17 (1), p.1-314, Article 314 [Periódico revisado por pares]

London: BioMed Central Ltd

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6
Reliability and validity of the Chinese version of the autoimmune bullous disease quality of life (ABQOL) questionnaire
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Artigo
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Reliability and validity of the Chinese version of the autoimmune bullous disease quality of life (ABQOL) questionnaire

Yang, Baoqi ; Chen, Guo ; Yang, Qing ; Yan, Xiaoxiao ; Zhang, Zhaoxia ; Murrell, Dédée F ; Zhang, Furen

Health and quality of life outcomes, 2017-02, Vol.15 (1), p.31-31, Article 31 [Periódico revisado por pares]

England: BioMed Central Ltd

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7
An analysis of the prevalence of osteoporosis and osteopenia in patients with epidermolysis bullosa: A cross‐sectional study
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Artigo
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An analysis of the prevalence of osteoporosis and osteopenia in patients with epidermolysis bullosa: A cross‐sectional study

Kang, Mina ; Chen, Jessica S. C. ; Radjenovic, Melissa ; Yang, Anes ; Feng, Grant H. Y. ; Murrell, Dedee F.

Experimental dermatology, 2021-11, Vol.30 (11), p.1675-1685 [Periódico revisado por pares]

Denmark: Wiley Subscription Services, Inc

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8
Translation, cross-cultural adaptation and validation of the Quality of Life Evaluation in Epidermolysis Bullosa instrument in Brazilian Portuguese
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Artigo
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Translation, cross-cultural adaptation and validation of the Quality of Life Evaluation in Epidermolysis Bullosa instrument in Brazilian Portuguese

Cestari, Tania ; Prati, Clarissa ; Menegon, Doris B. ; Prado Oliveira, Zilda N. ; Machado, Maria Cecília R. ; Dumet, Juliana ; Nakano, Juliana ; Murrell, Dédée F.

International journal of dermatology, 2016-02, Vol.55 (2), p.e94-e99 [Periódico revisado por pares]

England: Blackwell Publishing Ltd

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9
The Reliability, Validity and Responsiveness of Two Disease Scores (BPDAI and ABSIS) for Bullous Pemphigoid: Which One to Use?
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Artigo
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The Reliability, Validity and Responsiveness of Two Disease Scores (BPDAI and ABSIS) for Bullous Pemphigoid: Which One to Use?

Wijayanti, Asri ; Zhao, Cathy Y ; Boettiger, David ; Chiang, Yi Z ; Ishii, Norito ; Hashimoto, Takashi ; Murrell, Dedee F

Acta dermato-venereologica, 2017-01, Vol.97 (1), p.24-31 [Periódico revisado por pares]

Sweden: Medical Journals Sweden AB

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10
Hindi translation and validation of quality of life score in Indian patients with epidermolysis bullosa; and its correlation with the clinical severity assessment scores: A cross-sectional study
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Artigo
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Hindi translation and validation of quality of life score in Indian patients with epidermolysis bullosa; and its correlation with the clinical severity assessment scores: A cross-sectional study

Bishnoi, Anuradha ; Manjunath, Seema ; Kishore, Kamal ; De, Dipankar ; Handa, Sanjeev ; Murrell, Dedee F ; Mahajan, Rahul

Indian journal of dermatology, venereology, and leprology, 2022-03, Vol.88 (2), p.177-183, Article 177

United States: Scientific Scholar

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