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Material Type: Artigo
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Patient-reported outcomes and quality of life in recessive dystrophic epidermolysis bullosa: A global cross-sectional surveyEng, Victor A. ; Solis, Daniel C. ; Gorell, Emily S. ; Choi, Sara ; Nazaroff, Jaron ; Li, Shufeng ; de Souza, Mark P. ; Murrell, Dedee F. ; Marinkovich, M. Peter ; Tang, Jean Y.Journal of the American Academy of Dermatology, 2021-11, Vol.85 (5), p.1161-1167 [Periódico revisado por pares]United States: Elsevier IncTexto completo disponível |
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2 |
Material Type: Artigo
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The challenges of living with and managing epidermolysis bullosa: insights from patients and caregiversBruckner, Anna L ; Losow, Michael ; Wisk, Jayson ; Patel, Nita ; Reha, Allen ; Lagast, Hjalmar ; Gault, Jamie ; Gershkowitz, Jayne ; Kopelan, Brett ; Hund, Michael ; Murrell, Dedee FOrphanet journal of rare diseases, 2020-01, Vol.15 (1), p.1-1, Article 1 [Periódico revisado por pares]England: BioMed Central LtdTexto completo disponível |
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3 |
Material Type: Artigo
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Outcome measures for autoimmune blistering diseasesZhao, Cathy Y. ; Murrell, Dédée F.Journal of dermatology, 2015-01, Vol.42 (1), p.31-36 [Periódico revisado por pares]England: Blackwell Publishing LtdTexto completo disponível |
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4 |
Material Type: Artigo
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A phase II randomized vehicle-controlled trial of intradermal allogeneic fibroblasts for recessive dystrophic epidermolysis bullosaVenugopal, Supriya S., MBBS, MMed (Clin Epi) ; Yan, Wenfei, MD, PhD ; Frew, John W., MBBS, MMed (Clin Epi) ; Cohn, Heather I., MD, PhD ; Rhodes, Lesley M., RN ; Tran, Kim, MBBS, FRCPA ; Melbourne, Wei, MD, MSc ; Nelson, Janis A., RPh, MPharm ; Sturm, Marian, PhD ; Fogarty, Janice, RN ; Marinkovich, M. Peter, MD ; Igawa, Satomi, MD ; Ishida-Yamamoto, Akemi, MD, PhD ; Murrell, Dedee F., MA, BMBCh, MD, FACDJournal of the American Academy of Dermatology, 2013-12, Vol.69 (6), p.898-908.e7 [Periódico revisado por pares]United States: Mosby, IncTexto completo disponível |
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Material Type: Artigo
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A prospective short-term study to evaluate methodologies for the assessment of disease extent, impact, and wound evolution in patients with dystrophic epidermolysis bullosaPaller, Amy S ; Pope, Elena ; Rudin, Dan ; Malyala, Anna ; Ramsdell, Deborah ; Johnson, Ramsey ; Landy, Hal ; Murrell, Dedee FOrphanet journal of rare diseases, 2022-08, Vol.17 (1), p.1-314, Article 314 [Periódico revisado por pares]London: BioMed Central LtdTexto completo disponível |
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6 |
Material Type: Artigo
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Reliability and validity of the Chinese version of the autoimmune bullous disease quality of life (ABQOL) questionnaireYang, Baoqi ; Chen, Guo ; Yang, Qing ; Yan, Xiaoxiao ; Zhang, Zhaoxia ; Murrell, Dédée F ; Zhang, FurenHealth and quality of life outcomes, 2017-02, Vol.15 (1), p.31-31, Article 31 [Periódico revisado por pares]England: BioMed Central LtdTexto completo disponível |
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7 |
Material Type: Artigo
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An analysis of the prevalence of osteoporosis and osteopenia in patients with epidermolysis bullosa: A cross‐sectional studyKang, Mina ; Chen, Jessica S. C. ; Radjenovic, Melissa ; Yang, Anes ; Feng, Grant H. Y. ; Murrell, Dedee F.Experimental dermatology, 2021-11, Vol.30 (11), p.1675-1685 [Periódico revisado por pares]Denmark: Wiley Subscription Services, IncTexto completo disponível |
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8 |
Material Type: Artigo
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Translation, cross-cultural adaptation and validation of the Quality of Life Evaluation in Epidermolysis Bullosa instrument in Brazilian PortugueseCestari, Tania ; Prati, Clarissa ; Menegon, Doris B. ; Prado Oliveira, Zilda N. ; Machado, Maria Cecília R. ; Dumet, Juliana ; Nakano, Juliana ; Murrell, Dédée F.International journal of dermatology, 2016-02, Vol.55 (2), p.e94-e99 [Periódico revisado por pares]England: Blackwell Publishing LtdTexto completo disponível |
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9 |
Material Type: Artigo
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The Reliability, Validity and Responsiveness of Two Disease Scores (BPDAI and ABSIS) for Bullous Pemphigoid: Which One to Use?Wijayanti, Asri ; Zhao, Cathy Y ; Boettiger, David ; Chiang, Yi Z ; Ishii, Norito ; Hashimoto, Takashi ; Murrell, Dedee FActa dermato-venereologica, 2017-01, Vol.97 (1), p.24-31 [Periódico revisado por pares]Sweden: Medical Journals Sweden ABTexto completo disponível |
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10 |
Material Type: Artigo
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Hindi translation and validation of quality of life score in Indian patients with epidermolysis bullosa; and its correlation with the clinical severity assessment scores: A cross-sectional studyBishnoi, Anuradha ; Manjunath, Seema ; Kishore, Kamal ; De, Dipankar ; Handa, Sanjeev ; Murrell, Dedee F ; Mahajan, RahulIndian journal of dermatology, venereology, and leprology, 2022-03, Vol.88 (2), p.177-183, Article 177United States: Scientific ScholarTexto completo disponível |