Result Number | Material Type | Add to My Shelf Action | Record Details and Options |
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1 |
Material Type: Artigo
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The World Federation of Hemophilia Annual Global Survey 1999‐2018Stonebraker, Jeffrey S. ; Bolton‐Maggs, Paula H. B. ; Brooker, Mark ; Evatt, Bruce ; Iorio, Alfonso ; Makris, Michael ; O'Mahony, Brian ; Skinner, Mark W. ; Coffin, Donna ; Pierce, Glenn F. ; Tootoonchian, ElliaHaemophilia : the official journal of the World Federation of Hemophilia, 2020-07, Vol.26 (4), p.591-600 [Periódico revisado por pares]England: Wiley Subscription Services, IncTexto completo disponível |
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2 |
Material Type: Artigo
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Prophylaxis use of clotting factor replacement products in people with non‐severe haemophilia: A review of the literatureIorio, Alfonso ; Königs, Christoph ; Reding, Mark T. ; Rotellini, Dawn ; Skinner, Mark W ; Mancuso, Maria Elisa ; Berntorp, ErikHaemophilia : the official journal of the World Federation of Hemophilia, 2023-01, Vol.29 (1), p.33-44 [Periódico revisado por pares]England: Wiley Subscription Services, IncTexto completo disponível |
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3 |
Material Type: Artigo
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World Federation of Hemophilia Gene Therapy RegistryKonkle, Barbara A. ; Coffin, Donna ; Pierce, Glenn F. ; Clark, Cary ; George, Lindsey ; Iorio, Alfonso ; Mahlangu, Johnny ; Naccache, Mayss ; O’Mahony, Brian ; Peyvandi, Flora ; Pipe, Steve ; Quartel, Adrian ; Sawyer, Eileen K. ; Skinner, Mark W. ; Tortella, Bartholomew ; Watson, Crystal ; Winburn, IanHaemophilia : the official journal of the World Federation of Hemophilia, 2020-07, Vol.26 (4), p.563-564 [Periódico revisado por pares]England: Wiley Subscription Services, IncTexto completo disponível |
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4 |
Material Type: Artigo
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Non‐severe haemophilia: Is it benign? – Insights from the PROBE studyChai‐Adisaksopha, Chatree ; Noone, Declan ; Curtis, Randall ; Frick, Neil ; Nichol, Michael B. ; Germini, Federico ; O'Mahony, Brian ; Page, David ; Stonebraker, Jeffrey S. ; Skinner, Mark W. ; Iorio, AlfonsoHaemophilia : the official journal of the World Federation of Hemophilia, 2021-01, Vol.27 (S1), p.17-24 [Periódico revisado por pares]England: Wiley Subscription Services, IncTexto completo disponível |
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5 |
Material Type: Artigo
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Test-retest reliability of a mobile application of the patient reported outcomes burdens and experiences (PROBE) studyCurtis, Randall ; Wu, Joanne ; Iorio, Alfonso ; Frick, Neil ; Nichol, Michael ; Noone, Declan ; O'Mahony, Brian ; Page, David ; Stonebraker, Jeffrey ; Kucher, Alexandra ; Clearfield, Elizabeth ; Skinner, Mark W ; Germini, FedericoHaemophilia : the official journal of the World Federation of Hemophilia, 2024-05, Vol.30 (3), p.702-708 [Periódico revisado por pares]England: Wiley Subscription Services, IncTexto completo disponível |
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6 |
Material Type: Artigo
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Evaluation of the sexual health in people living with hemophiliaGermini, Federico ; Chai‐Adisaksopha, Chatree ; Pete, Drashti ; Curtis, Randall ; Frick, Neil ; Nichol, Michael B. ; Noone, Declan ; O'Mahony, Brian ; Page, David ; Stonebraker, Jeffrey S. ; Thabane, Lehana ; Crowther, Mark A ; Skinner, Mark W ; Iorio, AlfonsoHaemophilia : the official journal of the World Federation of Hemophilia, 2021-11, Vol.27 (6), p.993-1001 [Periódico revisado por pares]Chichester: Wiley Subscription Services, IncTexto completo disponível |
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7 |
Material Type: Artigo
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Test‐retest properties of the Patient Reported Outcomes, Burdens and Experiences (PROBE) questionnaire and its constituent domainsChai‐Adisaksopha, Chatree ; Skinner, Mark W. ; Curtis, Randall ; Frick, Neil ; Nichol, Michael B. ; Noone, Declan ; O'Mahony, Brian ; Page, David ; Stonebraker, Jeffrey ; Thabane, Lehana ; Crowther, Mark A. ; Iorio, AlfonsoHaemophilia : the official journal of the World Federation of Hemophilia, 2019-01, Vol.25 (1), p.75-83 [Periódico revisado por pares]England: Wiley Subscription Services, IncTexto completo disponível |
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8 |
Material Type: Artigo
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Psychometric properties of the Patient Reported Outcomes, Burdens and Experiences (PROBE) questionnaireChai-Adisaksopha, Chatree ; Skinner, Mark W ; Curtis, Randall ; Frick, Neil ; Nichol, Michael B ; Noone, Declan ; O’Mahony, Brian ; Page, David ; Stonebraker, Jeffrey ; Thabane, Lehana ; Crowther, Mark ; Iorio, AlfonsoBMJ open, 2018-08, Vol.8 (8), p.e021900-e021900 [Periódico revisado por pares]England: BMJ Publishing Group LTDTexto completo disponível |
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9 |
Material Type: Artigo
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Challenges and key lessons from the design and implementation of an international haemophilia registry supported by a pharmaceutical companyHay, Charles R. M. ; Shima, Midori ; Makris, Michael ; Jiménez‐Yuste, Victor ; Oldenburg, Johannes ; Fischer, Kathelijn ; Iorio, Alfonso ; Skinner, Mark W. ; Santagostino, Elena ; Mackensen, Sylvia ; Kessler, Craig M.Haemophilia : the official journal of the World Federation of Hemophilia, 2020-11, Vol.26 (6), p.966-974 [Periódico revisado por pares]England: Wiley Subscription Services, IncTexto completo disponível |
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10 |
Material Type: Artigo
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Exploring regional variations in the cross‐cultural, international implementation of the Patient Reported Outcomes Burdens and Experience (PROBE) studyChai‐Adisaksopha, Chatree ; Skinner, Mark W. ; Curtis, Randall ; Frick, Neil ; Nichol, Michael B. ; Noone, Declan ; O'Mahony, Brian ; Page, David ; Stonebraker, Jeffrey ; Thabane, Lehana ; Crowther, Mark A. ; Iorio, AlfonsoHaemophilia : the official journal of the World Federation of Hemophilia, 2019-05, Vol.25 (3), p.365-372 [Periódico revisado por pares]England: Wiley Subscription Services, IncTexto completo disponível |