Result Number | Material Type | Add to My Shelf Action | Record Details and Options |
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Material Type: Artigo
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Test-retest reliability of a mobile application of the patient reported outcomes burdens and experiences (PROBE) studyCurtis, Randall ; Wu, Joanne ; Iorio, Alfonso ; Frick, Neil ; Nichol, Michael ; Noone, Declan ; O'Mahony, Brian ; Page, David ; Stonebraker, Jeffrey ; Kucher, Alexandra ; Clearfield, Elizabeth ; Skinner, Mark W ; Germini, FedericoHaemophilia : the official journal of the World Federation of Hemophilia, 2024-03 [Periódico revisado por pares]EnglandTexto completo disponível |
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2 |
Material Type: Artigo
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Non‐severe haemophilia: Is it benign? – Insights from the PROBE studyChai‐Adisaksopha, Chatree ; Noone, Declan ; Curtis, Randall ; Frick, Neil ; Nichol, Michael B. ; Germini, Federico ; O'Mahony, Brian ; Page, David ; Stonebraker, Jeffrey S. ; Skinner, Mark W. ; Iorio, AlfonsoHaemophilia : the official journal of the World Federation of Hemophilia, 2021-01, Vol.27 (S1), p.17-24 [Periódico revisado por pares]England: Wiley Subscription Services, IncTexto completo disponível |
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3 |
Material Type: Artigo
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Patient preferences and priorities for haemophilia gene therapy in the US: A discrete choice experimentWitkop, Michelle ; Morgan, George ; O'Hara, Jamie ; Recht, Michael ; Buckner, Tyler W. ; Nugent, Diane ; Curtis, Randall ; O'Mahony, Brian ; Skinner, Mark W. ; Mulhern, Brendan ; Cawson, Matthew ; Ali, Talaha M. ; Sawyer, Eileen K. ; Li, NanxinHaemophilia : the official journal of the World Federation of Hemophilia, 2021-09, Vol.27 (5), p.769-782 [Periódico revisado por pares]Chichester: Wiley Subscription Services, IncTexto completo disponível |
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4 |
Material Type: Artigo
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Evaluation of the sexual health in people living with hemophiliaGermini, Federico ; Chai‐Adisaksopha, Chatree ; Pete, Drashti ; Curtis, Randall ; Frick, Neil ; Nichol, Michael B. ; Noone, Declan ; O'Mahony, Brian ; Page, David ; Stonebraker, Jeffrey S. ; Thabane, Lehana ; Crowther, Mark A ; Skinner, Mark W ; Iorio, AlfonsoHaemophilia : the official journal of the World Federation of Hemophilia, 2021-11, Vol.27 (6), p.993-1001 [Periódico revisado por pares]Chichester: Wiley Subscription Services, IncTexto completo disponível |
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5 |
Material Type: Artigo
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Building the foundation for a community-generated national research blueprint for inherited bleeding disorders: research priorities in health services; diversity, equity, and inclusion; and implementation scienceByams, Vanessa R. ; Baker, Judith R. ; Bailey, Cindy ; Connell, Nathan T. ; Creary, Melissa S. ; Curtis, Randall G. ; Dinno, Alexis ; Guelcher, Christine J. ; Kim, Michelle ; Kulkarni, Roshni ; Lattimore, Susan ; Norris, Keri L. ; Ramirez, Lucy ; Skinner, Mark W. ; Symington, Susan ; Tobase, Patricia ; Vázquez, Esmeralda ; Warren, Beth B. ; Wheat, Emily ; Buckner, Tyler W.Expert review of hematology, 2023-03, Vol.16 (sup1), p.87-106 [Periódico revisado por pares]England: Taylor & FrancisSem texto completo |
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6 |
Material Type: Artigo
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Test‐retest properties of the Patient Reported Outcomes, Burdens and Experiences (PROBE) questionnaire and its constituent domainsChai‐Adisaksopha, Chatree ; Skinner, Mark W. ; Curtis, Randall ; Frick, Neil ; Nichol, Michael B. ; Noone, Declan ; O'Mahony, Brian ; Page, David ; Stonebraker, Jeffrey ; Thabane, Lehana ; Crowther, Mark A. ; Iorio, AlfonsoHaemophilia : the official journal of the World Federation of Hemophilia, 2019-01, Vol.25 (1), p.75-83 [Periódico revisado por pares]England: Wiley Subscription Services, IncTexto completo disponível |
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7 |
Material Type: Artigo
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Psychometric properties of the Patient Reported Outcomes, Burdens and Experiences (PROBE) questionnaireChai-Adisaksopha, Chatree ; Skinner, Mark W ; Curtis, Randall ; Frick, Neil ; Nichol, Michael B ; Noone, Declan ; O’Mahony, Brian ; Page, David ; Stonebraker, Jeffrey ; Thabane, Lehana ; Crowther, Mark ; Iorio, AlfonsoBMJ open, 2018-08, Vol.8 (8), p.e021900-e021900 [Periódico revisado por pares]England: BMJ Publishing Group LTDTexto completo disponível |
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8 |
Material Type: Artigo
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Exploring regional variations in the cross‐cultural, international implementation of the Patient Reported Outcomes Burdens and Experience (PROBE) studyChai‐Adisaksopha, Chatree ; Skinner, Mark W. ; Curtis, Randall ; Frick, Neil ; Nichol, Michael B. ; Noone, Declan ; O'Mahony, Brian ; Page, David ; Stonebraker, Jeffrey ; Thabane, Lehana ; Crowther, Mark A. ; Iorio, AlfonsoHaemophilia : the official journal of the World Federation of Hemophilia, 2019-05, Vol.25 (3), p.365-372 [Periódico revisado por pares]England: Wiley Subscription Services, IncTexto completo disponível |
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9 |
Material Type: Artigo
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Examination and Validation of a Patient-Centric Joint Metric: “Problem Joint”; Empirical Evidence from the CHESS US DatasetBurke, Tom ; Rodriguez Santana, Idaira ; Chowdary, Pratima ; Curtis, Randall ; Khair, Kate ; Laffan, Michael ; McLaughlin, Paul ; Noone, Declan ; O'Mahony, Brian ; Pasi, John ; Skinner, Mark W ; O'Hara, JamieBlood, 2020-11, Vol.136 (Supplement 1), p.25-26 [Periódico revisado por pares]Elsevier IncTexto completo disponível |
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10 |
Material Type: Artigo
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Humanistic burden of problem joints for children and adults with haemophiliaBurke, Tom ; Rodriguez‐Santana, Idaira ; Chowdary, Pratima ; Curtis, Randall ; Khair, Kate ; Laffan, Michael ; Mclaughlin, Paul ; Noone, Declan ; O'Mahony, Brian ; Pasi, John ; Skinner, Mark ; O'Hara, JamieHaemophilia : the official journal of the World Federation of Hemophilia, 2023-03, Vol.29 (2), p.608-618 [Periódico revisado por pares]England: Wiley Subscription Services, IncTexto completo disponível |