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Refinado por: assunto: Patients remover
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1
Achieving the unimaginable: Health equity in haemophilia
Achieving the unimaginable: Health equity in haemophilia
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Achieving the unimaginable: Health equity in haemophilia

Skinner, Mark W. ; Nugent, Diane ; Wilton, Pam ; O’Mahony, Brian ; Dolan, Gerry ; O’Hara, Jamie ; Berntorp, Erik

Haemophilia : the official journal of the World Federation of Hemophilia, 2020-01, Vol.26 (1), p.17-24 [Periódico revisado por pares]

England: Wiley Subscription Services, Inc

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2
A preliminary application of a haemophilia value framework to emerging therapies in haemophilia
A preliminary application of a haemophilia value framework to emerging therapies in haemophilia
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A preliminary application of a haemophilia value framework to emerging therapies in haemophilia

Skinner, Mark W. ; Dolan, Gerry ; Eichler, Hermann ; O'Mahony, Brian

Haemophilia : the official journal of the World Federation of Hemophilia, 2022-03, Vol.28 (S2), p.9-18 [Periódico revisado por pares]

England: Wiley Subscription Services, Inc

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3
Evidence of a disability paradox in patient‐reported outcomes in haemophilia
Evidence of a disability paradox in patient‐reported outcomes in haemophilia
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Evidence of a disability paradox in patient‐reported outcomes in haemophilia

O’Hara, Jamie ; Martin, Antony P. ; Nugent, Diane ; Witkop, Michelle ; Buckner, Tyler W. ; Skinner, Mark W. ; O’Mahony, Brian ; Mulhern, Brendan ; Morgan, George ; Li, Nanxin ; Sawyer, Eileen K.

Haemophilia : the official journal of the World Federation of Hemophilia, 2021-03, Vol.27 (2), p.245-252 [Periódico revisado por pares]

England: Wiley Subscription Services, Inc

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4
Family caregivers' perspectives on the acceptability of four interventions proposed for rural transitional care: A multi-method study
Family caregivers' perspectives on the acceptability of four interventions proposed for rural transitional care: A multi-method study
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Family caregivers' perspectives on the acceptability of four interventions proposed for rural transitional care: A multi-method study

Fox, Mary T ; Butler, Jeffrey I ; Sidani, Souraya ; Alzghoul, Manal M ; Skinner, Mark ; Amell, Travis ; Ferguson-Paré, Mary Donlan, Joseph

PloS one, 2022-12, Vol.17 (12), p.e0279187-e0279187 [Periódico revisado por pares]

United States: Public Library of Science

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5
The Hemophilia Gene Therapy Patient Journey: Questions and Answers for Shared Decision-Making
The Hemophilia Gene Therapy Patient Journey: Questions and Answers for Shared Decision-Making
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The Hemophilia Gene Therapy Patient Journey: Questions and Answers for Shared Decision-Making

Wang, Michael ; Negrier, Claude ; Driessler, Frank ; Goodman, Clifford ; Skinner, Mark W

Patient preference and adherence, 2022-01, Vol.16, p.1439-1447 [Periódico revisado por pares]

New Zealand: Dove Medical Press Limited

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6
Lost in transition? Community residential facility staff and stakeholder perspectives on previously incarcerated older adults' transitions into long-term care
Lost in transition? Community residential facility staff and stakeholder perspectives on previously incarcerated older adults' transitions into long-term care
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Lost in transition? Community residential facility staff and stakeholder perspectives on previously incarcerated older adults' transitions into long-term care

Poulin, Laura I L ; Colibaba, Amber ; Skinner, Mark W ; Balfour, Gillian ; Byrne, David ; Dieleman, Crystal

BMC geriatrics, 2023-03, Vol.23 (1), p.180-180, Article 180 [Periódico revisado por pares]

England: BioMed Central Ltd

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7
Patient preferences and priorities for haemophilia gene therapy in the US: A discrete choice experiment
Patient preferences and priorities for haemophilia gene therapy in the US: A discrete choice experiment
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Patient preferences and priorities for haemophilia gene therapy in the US: A discrete choice experiment

Witkop, Michelle ; Morgan, George ; O'Hara, Jamie ; Recht, Michael ; Buckner, Tyler W. ; Nugent, Diane ; Curtis, Randall ; O'Mahony, Brian ; Skinner, Mark W. ; Mulhern, Brendan ; Cawson, Matthew ; Ali, Talaha M. ; Sawyer, Eileen K. ; Li, Nanxin

Haemophilia : the official journal of the World Federation of Hemophilia, 2021-09, Vol.27 (5), p.769-782 [Periódico revisado por pares]

Chichester: Wiley Subscription Services, Inc

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8
Protocol of a multimethod descriptive study: adapting hospital-to-home transitional care interventions to the rural healthcare context in Ontario, Canada
Protocol of a multimethod descriptive study: adapting hospital-to-home transitional care interventions to the rural healthcare context in Ontario, Canada
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Protocol of a multimethod descriptive study: adapting hospital-to-home transitional care interventions to the rural healthcare context in Ontario, Canada

Fox, Mary T ; Sidani, Souraya ; Butler, Jeffrey I ; Skinner, Mark W ; Alzghoul, Manal

BMJ open, 2019-05, Vol.9 (5), p.e028050-e028050 [Periódico revisado por pares]

England: BMJ Publishing Group LTD

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9
Psychometric properties of the Patient Reported Outcomes, Burdens and Experiences (PROBE) questionnaire
Psychometric properties of the Patient Reported Outcomes, Burdens and Experiences (PROBE) questionnaire
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Psychometric properties of the Patient Reported Outcomes, Burdens and Experiences (PROBE) questionnaire

Chai-Adisaksopha, Chatree ; Skinner, Mark W ; Curtis, Randall ; Frick, Neil ; Nichol, Michael B ; Noone, Declan ; O’Mahony, Brian ; Page, David ; Stonebraker, Jeffrey ; Thabane, Lehana ; Crowther, Mark ; Iorio, Alfonso

BMJ open, 2018-08, Vol.8 (8), p.e021900-e021900 [Periódico revisado por pares]

England: BMJ Publishing Group LTD

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10
Challenges and key lessons from the design and implementation of an international haemophilia registry supported by a pharmaceutical company
Challenges and key lessons from the design and implementation of an international haemophilia registry supported by a pharmaceutical company
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Challenges and key lessons from the design and implementation of an international haemophilia registry supported by a pharmaceutical company

Hay, Charles R. M. ; Shima, Midori ; Makris, Michael ; Jiménez‐Yuste, Victor ; Oldenburg, Johannes ; Fischer, Kathelijn ; Iorio, Alfonso ; Skinner, Mark W. ; Santagostino, Elena ; Mackensen, Sylvia ; Kessler, Craig M.

Haemophilia : the official journal of the World Federation of Hemophilia, 2020-11, Vol.26 (6), p.966-974 [Periódico revisado por pares]

England: Wiley Subscription Services, Inc

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