skip to main content
Idioma:
Primo Search
Clear Search Box
Search in: Busca Geral
Busca Avançada
Busca por Índices

Key Features of a Multi-Disciplinary Hospital-Based Rehabilitation Program for Children and Adolescents with Moderate to Severe Myalgic Encephalomyelitis/Chronic Fatigue Syndrome ME/CFS

Hiremath, Sonya ; Doukrou, Montserrat ; Flannery, Halina ; Carey, Catherine ; Gregorowski, Anna ; Ward, Joseph ; Hargreaves, Dougal ; Segal, Terry Yvonne

MDPI 2022-10

Texto completo disponível

Citações Citado por
  • Título:
    Key Features of a Multi-Disciplinary Hospital-Based Rehabilitation Program for Children and Adolescents with Moderate to Severe Myalgic Encephalomyelitis/Chronic Fatigue Syndrome ME/CFS
  • Autor: Hiremath, Sonya ; Doukrou, Montserrat ; Flannery, Halina ; Carey, Catherine ; Gregorowski, Anna ; Ward, Joseph ; Hargreaves, Dougal ; Segal, Terry Yvonne
  • Assuntos: adolescent ; chronic fatigue syndrome ; Environmental & Occupational Health ; Environmental Sciences ; Environmental Sciences & Ecology ; inpatient ; Life Sciences & Biomedicine ; long COVID ; measure ; moderate ; myalgic encephalomyelitis ; myalgic encephalopathy ; outcomes ; Public ; Science & Technology ; severe ; treatment ; young people
  • Notas: International Journal of Environmental Research and Public Health , 19 (20) , Article 13608. (2022)
  • Descrição: Purpose of the study: There is limited published data on treatment or outcomes of children and young people (CYP) with moderate or severe Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS). Here, we describe outcomes of moderate and severe ME/CFS in CYP treated in a tertiary adolescent service. This information is useful when planning services for CYP and families affected by moderate/severe ME/CFS and to guide future management trials and commissioning decisions. Study Design: A retrospective review was conducted of medical records of the 27 CYP who received ward-based treatment in 2015. Notes were retrospectively reviewed to assess progress in four markers of wellbeing over the period of treatment: (i) mobility, (ii) education, (iii) sleep and (iv) involvement in social/recreational activities. Results: A total of 23/27 (85%) showed improvement in one or more domains over their period of ward-based therapy. 19/27 (70%) of patients showed improvement in physical ability. In 15/23 patients (65%), there was an improvement in ability to access education, in 12/24 (50%) sleep improved, and 16/27 (59%) demonstrated an improvement in socialising/ability perform recreational activities. Conclusion/Implications: A multidisciplinary hospital-based rehabilitation programme for moderate and severe ME/CFS was associated with improvement in at least one area of wellbeing in 85% of the CYP we reviewed. These data may be used as a baseline to evaluate the impact of other models of delivering care for this patient group. It may be useful when considering other groups such as those affected by Post-COVID Syndrome.
  • Editor: MDPI
  • Data de criação/publicação: 2022-10
  • Idioma: Inglês
Links
Voltar para lista de resultados

  • Realização: ABCD-USP USP   Logos de Redes Sociais: Freepik

Buscando em bases de dados remotas. Favor aguardar.